Hi,
My name is Rachel (21) and my father (52) has Motor Neurone Disease. Look it up if you want to know more about it. See http://www.mndnsw.asn.au/index.htm for starters.
He's been diagnosed for over a year now. At this point, he can walk 15 metres max in one go, and gets slowly worse every day. He is still working, although he probably shouldn't. He is still driving, although he definitely shouldn't be. There are however a lot of shouldn'ts, but when it comes to a man's sense of pride and vanity, these shoulds and shouldn'ts are superceded by a need for acceptance.
Nonetheless, these are all details that will be delved into later. Right now, my reason for creating this, is in hope that this might help other people who find themselves in a similar situation to me, in dealing with a loved one having Motor Neurone Disease, or in fact any other progressive degenerative neurological issue.
I am also hoping that this will be cathartic for me. A way of documenting what has been happening, for something to look back on, one day.
No comments:
Post a Comment